Last Summer and Recent Photos

In reading the title of this blog it says a man's journey with Multiple Sclerosis and an old bay horse. Since I have been back posting it has only been about Bouffe; so, I need to fill you in about me.

This time last year I was just getting home from spending eight weeks in the hospital after getting a very serious infection that the doctors, to this day, still cannot identify. The infection did affect my MS, making all of the symptoms worse. I am still trying to get back to where I was before getting sick. Riding Bouffe again is my goal, which I am working towards very slowly with PT, exercise and music therapy.

I wrote while I was in there and this what I transcribed after being brought back to life on April 28, 2016 at 8pm.

April 28, 2016 8pm

BLACK, black as a night lacking a moon or any stars. 
Black was something my mother never liked; 
for, it was evil, the devil, hell.

But I felt a sense of peace, 
until the pounding began on my chest. 
A beating as if administered with a brick 
that was crumbling with every blow.

Each clubbing more intense 
until a flash of light broke the darkness 
and I heard the screaming 
WAYNE, WAYNE. 

***

Performing music both vocally and with my guitar is a creative process that I find very spiritual.

 That Light

The show is just over

You’ve been with God for the last two hours.

There is nothing any better.


You get ready for bed and light a candle.

Everything you need is in that Light.

You fall asleep and do it all over again

tomorrow. 

***

Finally, here are some more photos Zoe took of Bouffe: